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WIB-National Webinar "The Secrets of Genetics: Rare Disease Global Communities are Paving the Way"
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WIB-National Webinar

When: Tuesday, February 13, 2018
12:00 p.m. - 1:00 p.m. CST
Where: Webinar link to be provided in confirmation email
Contact: WIB-National

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The Human Genome project took 13 years and billions of dollars to build. From this monumental achievement, thousands of genetic diseases have been identified and many hoped it would enable the life sciences industry to put a halt to some diseases. However, we’ve learned that even though scientists can sequence a genome in a day at a low cost, mystery remains around how genetics contribute to disease, health, and wellness leaving us still learning how the majority of genes play a role in complex diseases. Rare diseases pose an even more unique challenge because of the research needed for a small subset of the population, which makes up about 350,000 people. Kids are the most vulnerable patient population, which in turn, stems many family led groups that collectively create patient global communities that help lift awareness. The goal is to support the research to reveal the functional genomics/disease biology and leverage, both common and rare.


Speaker Biography

Christina Waters, PhD, MBA, has been responsible for leading medical research in a broad range of organizations ranging from academia and disease – focused non-profits to biotech and large pharmaceutical companies. Her broad range of experience in basic, translational, and clinical research and business strategies converge to specialize in the development of new approaches to personalized medicine and health, creation of synergistic partnerships and implementation of new innovative research initiatives.

She is CEO and Founder of RARE Science, a non-profit research organization that enables the rare scientific research community to accelerate discovery of therapeutic solutions for patients with rare disease. In addition, she serves as a Scientific Advisory board member, for Global Genes|Rare Project, which focuses on advocacy and education for the rare disease community and as a Senior Advisor for Personalized Medicine and Health Informatics for Pricewaterhouse Coopers’ Personalized Medicine and Health Sciences Practices serving academic and research organizations across the healthcare continuum.

Dr. Waters received her Ph.D. in Genetics from the University of California, Davis as a NIH Biotechnology Fellow. She was a Postdoctoral Scholar and Associate of the Howard Hughes Medical Institute in the Division of Biology, California Institute of Technology. Dr. Waters also completed an NIH Postdoctoral fellowship at University of California, Berkeley, and received a Bachelor of Science in Biology from San Diego State University. Dr. Waters received her MBA from University of California, Los Angeles.


Walk-Ins Accepted?

Walk-ins are not accepted – be sure to register early!


Pricing Information

Members: Free

Non-Members: $30

* - Registrants will be sent a specific GoToMeeting link to access the webinar. Please be sure to click on the link before the webinar to ensure the program is properly installed on your computer.


Registration Deadline

February 12, 2018


Event Date/Time

Tuesday, February 13, 2018

12:00 p.m. CST*

*- Please note this webinar's time is listed in Central Standard Time.



Webinar link to be provided in confirmation email


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