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WIB-Southern California: The Broken Wheel: Connecting Data with Real People, February 26, 2019

Posted By Roberta Alexander, Tuesday, March 5, 2019

The February event of the Southern California chapter of Women In Bio focused on how to close the gap between research and clinical data is and how progress in this area can positively impact patients. The event was sponsored by our chapter sponsor, IQVIA, and was held at their facility in San Diego. As usual, the event started with a lively networking reception with delicious finger food, cheese and crackers, wine and soft drinks.

 

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More than 80 people came out to join the panel discussion. The upcoming chair of WIB SoCal, Katy McCowen, spoke about WIB and Linda Strause introduced the panelists.  

Tracy Dixon-Salazar, Ph.D., Director of Research and Strategy at LGS Foundation, shared a very personal story. She decided to get a Phd. in neurobiology and neuroscience to better understand and study Lennox-Gastaut Syndrome (LGS), a rare and severe form of childhood-onset epilepsy that affected her daughter.
Dawn Barry co-founded approximately a year ago LunaDNA, a community-owned platform to securely store and share de-identified personal health information for health and quality of life research.

The theme of genome research and personalized medicine continued with Anna Barker, Ph.D., co-director of Complex Adaptive Systems – Biomedicine, Director of the National Biomarker Development Alliance, and Professor at Arizona State University and Wendy Benson, Vice President, Strategic Initiatives at Rady Children’s Institute of Genomic Medicine. Rady’s launched a few months ago the Project Baby Bear, the first California state-funded program to offer whole genome sequence for critically-ill newborns hospitalized in intensive care units. Finally, Kelly Theel, Ph.D., Senior Regulatory Affairs Officer at IQVIA told the story of how the mother of a child with Tourette’s syndrome advocated with Congress to pass the Rare Disease Act in 2002 to incentivize companies to develop much-needed treatments for rare diseases.

To read more, visit Dr. Roberta Alexander's Linkedin page here.

Tags:  2019 

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